Wednesday: Found It
Posted by stephanie on December 12th, 2007
I received the results from my echocardiogram and they were not able to rule out vegetation on the valves. It did show moderate pulmonary hypertension & tricuspid regurgitation. The bad thing is I was alone & asleep when doctor came. They had medicated me for a bout of pain & nausea and I was not the sharpest rock. They will continue to consider a transesophageal echo pending the results of the white cell scan. Today I am having the last phase of the White Cell Scan completed. It is a special body scan that will look for pockets of the radioactive WBCs. I am now running low grade with nothing over 100. It’s about time! The team received the results from the WBC scan which did not indicate a massive infection anywhere.
I think they found it! Earlier in the week they took a skin biopsy from my rash. It came back indicating Sweets Syndrome (SS) which is a rare reactive systemic disease characterized by acute fever and painful skin lesions. It is not “just a rash on the skin” as it effects the entire body. The condition starts suddenly with the appearance of red, slightly raised and tender bumps, usually on your back, arms, face or neck. These painful bumps rapidly increase in size, and they may progress to blisters.
Sweet’s syndrome
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May follow an upper respiratory infection in young adults
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Can be associated with certain types of cancer, such as leukemia
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May occur as a reaction to medication like Neupogen
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Occurs most often in women 30 to 50 years of age.
Sweet’s syndrome treatment is oral and/or topical medications. Sweet Syndrome is traditionally treated with steroids (prednisone). There are also other drugs used for patients whom steroids are contraindicated.
December 12th, 2007 at 9:09 am
Stephanie,
I am praying for you every day. Thank you for the updates. It is incredibale what you are sharing.
Peace, blessings and strength,
Susan
December 12th, 2007 at 3:37 pm
Stephanie, I’ve not written before but when I can’t find your parents, I look to see where you are. :o) Your posts are always so positive. Please know as a survivor, I know how important that is and how difficult it can be at times. Praying for your fever to shut down so you can be at home! Ed & Joan, if you want me to bring dinner, just call. xoxoxo
Gail Morris